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Hydropolis Hotel Click en la foto. Bicivilizate, Santiago en Bicicleta ;D. Una nueva tendencia de viaje. El mundo en tus manos. Comment by Walther Maratuech Parodi on 6 de marzo de , Comment by veronica on 8 de junio de , Comment by Miguel Angel on 1 de febrero de , Espero que vayas y que no sea nada!!! Hola Nuria, mil gracias por todas las palabras d aliento que nos das y sobre todo por resolver las dudas sobre la enfermedad. Gracias a vos por compartir esto con Nuria y por ende con nosotros, sus seguidores.
Eso es en verdad muy importante, imprescindible en nosotros!!! Te voy a poner en mis oraciones desde hoy, y nuevamente gracias por hacer que nuestra esperanza no decaiga!!!
Abrazos de luz para vos!!! Los miedos son normales y todos los tenemos, pero tenemos que apartarlos y no dejar que ocupen nuestra mente y oscurezcan nuestras esperanzas e ilusiones.
Quiero saber si existe la posibilidad de tener lupus y salir con ANA negativos…….. Cuando una persona tiene SAF tiene que cuidarse de por vida para evitar posibles trombos. Muchos tomamos aspirina a bajas dosis precisamente para controlar el SAF.
Y, por supuesto, la dieta sana y un poco de ejercicio siempre ayudan ;-. Hola, mi nombre es sandra, mi historia es la siguiente: Con mi primer hijo me hicieron cesarea y despues de esto a los 15 dias presente una TVP trombosis venosa profunda , en la actualidad estoy anticoagulada indefinidamente; desde el mes de mayo he estado presentando una serie de dolores a nivel de los musculos y los huesos, cansancio permanente y mal humor. En primer lugar, me alegro mucho por tus dos hijos sanotes: El descanso es fundamental.
No me cabe duda. Y mi tratamiento me retiraron la cloroquina y inmeciatamente me mandaron enoxaparina. Es tanto el amor que iradias que esos pinzasos subcutaneos ni se sienten ademas la aspireneta asa por los trombos esta te la descontinuan en la semana 28 por el desarrollo del cerebro del bebe por una semana, te controlan con ecografias y laborAtorios cada mes, por las contras bajo peso, preclanxia, clancia etc.
Bueno cuando tube en mis brazos a PIpe fue maravilloso estuve en la clinica por tre dias y me mandaron a casa con enoxaparina de 60 por 45 dias mas y asa les cuento q esta parte no me gusto x las inyecciones lz piel exts tan tensa que el pinchazo me dolia mucho, no senti las de los 8 meses pero estas si. A se me olvidava porls enoxaparina la leche sabe feo y la rechazan. Bueno tienes q vivir tu duelo q es bien dificil!
Tus angelitos siempre estaran en ti! Y no todo lo q encuentras en la red del saf es cierto. No te angusties ni te desesperes tomatelo poco a poco a tu ritmo. Animo y te mando un abrazo muy grande desde BOgota. Pero no desesperes no es facil y mas siendo tan joven ,veras que tendras a tu hija. Hola soy maria tengo 33 anos soy de valencia venezuela y soy madre de 2 hijos una de 14 anos y mi bebe hermoso de 9 meses a mi me diagnosticaron un SAF primario con mi segundo embarazo el de mi bebe fue diagnosticado en la sem 12 del embarazo con una anticardiolipinas positivas persistentes con el embarazo el tto medico fue heparina.
Y aspirina diaria gracias a mi Dios mi bebe nacio completamente sano los medicos decian q me favorecia q nunca tuve aborto despues del parto meses despues me realizan de nuevo los analisis los cuales arrojan unas anticardiollipinas positivas y el ana western blot positivo debil donde la inmunologa dice q no me puede dar un diagnostico preciso me manda tto medico desflazacort plaquinol hasta nueva orden y q me realice de nuevo los analisis.
Aun no me los he realizado pero tengo mucho miedo de lo q me vayan a Diagnosticar. A parte tengo dolores en las articulaciones y lesiones en la piel. Si es lupus, tranquila. Un abrazo enorme y espero que salga todo bien. Cuando mejores es de esperar que el cansancio desaparezca. Luego comiensan los falsos pocitivos de VRL , luego al ir a consulta se me hacia nuevamente dando negativo , la otra consuta positivo fueron varias veces.
En cuando se me interna empiesan a aparecer las explicaciones , todo se devia al Sindrome Antifosfolipidico. Cuando este tipo de desgracias llegan a nuestras vidas, tenemos que agarrarnos a lo bueno que tenemos, no crees? Me mandaron a repetir los estudios de los anticuerpos? El SAF no es una enfermedad grave, Meri. Seguro que te dan una respuesta que te tranquiliza y resuelve las dudas: Eso me puso muy contenta pero a la vez tengo un poco de miedo.
Aunque yo no tengo lupus leo mucho tu blog, te mando un apoyo grande! Te mando un beso, gracias por tus respuestas! Una de las cosas que repito mil veces es que cada paciente es un mundo, por lo que las comparaciones no siempre son aconsejables ni beneficiosas.
Te mando un abrazo fuerte. Tenga lupus o no. La heparina es normal que nos las den a las que tenemos SAF cuando nos quedamos embarazadas. Es para prevenir los posibles efectos del SAF. Vaya, hasta el 27 de julio!!! Pero parece que te han hecho un completo con las pruebas ;-. Y, sobre todo, a ver si te dan algo para que se vayan los dolores, no? Curioso que todas seais mujeres, yo por el contrario soy hombre y tambien tengo SAF y aunque no doy todos los marcadores para el LES me tratan como si lo tuviera.
Tras una trombocitopenia me detectaron un coagulo dentro del corazon, lo que implica que ahora tengo una preciosa cicatriz en medio del pecho, que aunque molesta, a mi parecer, imprime personalidad. No tiene demasiadas molestias salvo algun brote de lupus que te deja doblado. Bueno me uno a todas las enfermitas, aqui, uno mas. Bueno, aunque sea complicado, no pienses que vas a tener lupus.
Estimada marcela m gustaria saber si al final te han diagnosticado alguna enfermedad autoinmune, pues tengo mismos sintomas despues de una embolia pulmonar y saaf, y nadie me diagnostica nada,. Lo mejor es que le preguntes. Por eso es importante que estemos informados! He insisted she be admitted into the hospital immediately and comply with a controlled diet for a month.
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